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EMPOWERING LIVES

HHT Ireland’s Commitment to Awareness, Support, and Research

What is HHT?

Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder characterised by abnormal blood vessel formation, leading to frequent nosebleeds, skin telangiectasias, and arteriovenous malformations in various organs (AVMs).

Dedicated to improving lives

HHT Ireland is dedicated to improving the lives of individuals and families affected by this condition through a comprehensive approach that encompasses awareness, education, support, and research. Its vision is to create a world where those living with HHT have access to early diagnosis, effective treatment, and a supportive community.

Raising Awareness

Our aim is to raise awareness among the public and healthcare professionals, to ensure that individuals with HHT receive accurate information and high-quality care, and drive research efforts towards better treatments. HHT Ireland’s actions include organising educational events and support groups, advocating for improved healthcare policies and collaborating with international HHT organisations.

Fostering a network of support

By fostering a network of support and resources, HHT Ireland aims to alleviate the challenges faced by those with HHT and to make significant strides in combating this often-overlooked condition.

JOIN US IN RAISING AWARENESS FOR OUR MOVE4HHT 22ND JUNE

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