The Story behind Move4HHT

A Legacy of Hope: The Story Behind HHT Ireland’s Moveathon Move4HHT

HHT Ireland stands as a beacon of hope and support for families grappling with the realities of Hereditary Hemorrhagic Telangiectasia (HHT), a rare genetic disorder that affects the blood vessels. Our mission is deeply rooted in the experiences and memories of those we have lost, particularly one young man whose life and legacy inspire us to move forward with relentless determination.

Paul Woods was a vibrant young man, full of dreams and aspirations. At just 22 years old, his life was tragically cut short by HHT, a condition he had lived with but had not allowed to define him. Paul’s sudden and unexpected death shook his family, friends, and the entire HHT community to its core. His passing illuminated the urgent need for increased awareness, better understanding, and more comprehensive support for those living with HHT.

Paul’s story is not just one of loss, but of inspiration.

So in his memory, Lets #Move4HHT

Join the Campaign | Move4HHT

For this years, we are asking everyone to Move4HHT – walk, run, cycle, swim, dance, or choose any activity that gets you moving to raise funds and awareness for HHT Ireland. We are excited to invite you to participate in our Moveathon 2024 on June 22nd.

Invite your friends to join you as you raise awareness of HHT by simply moving.

Everyone could walk, jog, run, push a pram, climb a mountain, swim…… anything, just MOVE!!

We encouraged you to Invite your friends to join you as you raise awareness of HHT by simply moving.

We shared Training Tips every day from June 1st – June 10th on our Social Media pages. Everyone was invited to  check out our two pages Facebook and Instagram.



HHT Moveathon 2024



Sophie in Carryduff

Alison in Wiltshire


HHT Jacqui

Pablo in Barcelona


McGlincheys in Letterkenny