Become A Member of HHT Ireland
When you become a member of HHT Ireland it connects you with a supportive community dedicated to raising awareness, sharing knowledge, and providing resources for those affected by Hereditary Haemorrhagic Telangiectasia (HHT). As a member, you’ll have access to the latest information on HHT, opportunities to participate in events, and a platform to share your experiences. Your involvement helps us advocate for better care, support ongoing research, and foster a sense of belonging among those impacted by this rare condition. Together, we can make a difference in the lives of HHT patients and their families.
The benefits to HHT Ireland members are:
1
2
3
4
5
We hold monthly patient online meetings where members can share their experiences of HHT. Many people hear of new management tips for their HHT at these events. Contacts for HHT experts are often shared and discussed between patients.
You have access to advice and support via our closed Facebook group for members. Here you can share experiences with each other. The Facebook group, called “HHT In Ireland”, is very active and rewarding.
You have direct and personal communication with our Admin team via Messenger or phone 083/4222302.
You will be notified of any fundraising event happening around the country that might interest you.
You receive invitation-via-email to our Annual Patient Forum each year.