


HHT Patient Forum 2024
See you at our Annual HHT Patient Forum 2024

Interview with Jane Madden
On World Liver Day, Jane Madden talks about living with HHT and how it affects her Liver

Rare Disease Day
Dara Woods talks to Greg Hughes from Highland Radio about Rare Disease Day 2024

Rare Diseases Day Awareness
Watch Denis Naughten TD – Wed 14th Feb – live on Oireachtas TV as he raises awareness of Rare Diseases

#myHHTvalentine Campaign 2024
Donate blood today and save up to 3 lives…