World HHT Day – A Message of Thanks and a Call to Action
World HHT Day – June 23rd Today, on World HHT Day, we want to begin with one very important message — thank you. Thank you to the researchers who dedicate their lives to understanding HHT and working tirelessly to find better treatments and one day, a cure. Behind...
Moveathon 2026: Thank You!
A huge thank you to everyone who took part in Moveathon 2026, from Madrid to Malahide Castle, to support HHT Ireland and raise awareness ahead of World HHT Day.
Moveathon 2026
HHT Ireland’s Moveathon 2026 takes place on Saturday 20th June. Wherever you are in the world, get moving, have fun and help raise vital awareness and funds for families living with HHT.
HHT Awareness Month: A Family’s Century-Long Journey with HHT
Five generations of one Irish family living with HHT — and the diagnosis that changed everything.
HHT and hormones: 5 ways your body changes
For people living with Hereditary Haemorrhagic Telangiectasia, symptoms don’t stay static — they shift dramatically across a lifetime. Emerging research reveals that sex hormones act as a hidden switch, altering the severity of HHT from pregnancy to menopause. Here are five surprising ways your hormonal profile may be controlling this rare vascular disorder.