Rare Barometer Survey for HHT
Rare Barometer Survey for HHT
Richael Timothy – Paracyclist
RICHAEL TIMOTHY – Paracyclist, Shares her HHT Story
Rare Barometer Survey on Newborn Screening
Welcome to Rare Barometer, where your voice shapes the future of rare diseases
HHT Patient Forum 2024
See you at our Annual HHT Patient Forum 2024
Interview with Jane Madden
On World Liver Day, Jane Madden talks about living with HHT and how it affects her Liver
Rare Disease Day 2024
Dara Woods talks to Greg Hughes from Highland Radio about Rare Disease Day 2024