


Rare Barometer Survey for HHT
Rare Barometer Survey for HHT

Richael Timothy – Paracyclist
RICHAEL TIMOTHY – Paracyclist, Shares her HHT Story

Rare Barometer Survey on Newborn Screening
Welcome to Rare Barometer, where your voice shapes the future of rare diseases

HHT Patient Forum 2024
See you at our Annual HHT Patient Forum 2024

Interview with Jane Madden
On World Liver Day, Jane Madden talks about living with HHT and how it affects her Liver