HHT-Eurordis-logoThe involvement of Patients and Patient Organisations in the European Reference Networks.



It is so important that ERNs remain centred on patients’ needs.

ERNs give clinicians and patient organisations from different countries the opportunity to co-design better healthcare services for people living with rare diseases.

Read the ERNs factsheet produced by Eurordis to understand what ERNs do and how you can get involved.