Jack’s story

My name is Jack McCabe and I am 10 years old.

I was 4 years old when i was first diagnosed with HHT.

My big brother Ryan and little sister Lara have also been tested for HHT but I am the only one out of the three of us that have it. I don’t remember being told I have HHT,  my mam and dad always tell me I’m special to have HHT and I am just like my dad as he has HHT too.


My teachers know I have nosebleeds and are very understanding if I have a nosebleed in class. I get small nosebleeds most days, I try not let it stop me having fun in the yard with my friends. My friends are very nice and they understand I get nosebleeds.

HHT affects me by waking up with blood all over my pillow, sheets and face. When I am doing swimming lessons I could get a nosebleed and have to get out of the water until it stops. I can’t do martial arts or boxing and that’s something I would like to do.

The nosebleeds are very unpredictable and can happen at any moment but I will not let it stop me from living my life and having fun!!!!