HHT Resources
Below are links to HHT resources that may help answer any further questions you have about the condition, its management, and available treatments. These resources include educational materials, support networks, and professional organisations dedicated to improving the lives of those affected by HHT. If you have a resource that you believe would greatly benefit HHT patients and their families, we encourage you to share it with us. Your contributions can make a significant difference in providing comprehensive and up-to-date information to the HHT community. Please contact us with any suggestions or additions to our resource page.
HHT Flyer – HHT Flyer
HHT Booklet – HHT Booklet
CureHHT – Resource Library
School Guide PDF – School Guide Ireland 2023
International Guidelines – International Guidelines 2020
Dietary Choices Impacting Bleeding – HERE
CureHHT Physician Factsheet – HERE
CureHHT webinars – HERE
Oral Health Guide – HERE
Doctor’s Brochure – HERE
Life Expectancy (German Paper) – HERE
Life Expectancy (Dutch Paper) – HERE
CureHHT 14th International Scientific Conference, Portugal 2022 – HERE
Well-being and Positive Psychology | Fiona Forman. – HERE Supporting Your Childs Emotional Wellbeing Booklet – HERE
By working together we can find effective solutions to improve HHT patients in their daily lives.
Your life story is valuable in making a difference, the more we talk about it, the more we can change things.
TOGETHER WE HAVE THE POWER TO CHANGE THINGS
You can send us your story to info@hhtireland.org