Looking for more information on Hereditary Haemorrhagic Telangiectasia (HHT)? The links below lead to trusted HHT resources covering the condition, how it is managed and the treatments available. You will find educational materials, support networks and professional organisations dedicated to helping people affected by HHT.

Know of a resource that could help the HHT community? We would love to hear about it. Get in touch with your suggestions and we will look at adding them to this page, so it stays useful and current for patients and families.

National HHT Centre – Patient | Coordinator Liz Devlin Email : ldevlin@muh.ie Leave a voicemail at 021/4248186.

By working together we can find effective solutions to improve HHT patients in their daily lives.

Your life story is valuable in making a difference, the more we talk about it, the more we can change things.

TOGETHER WE HAVE THE POWER TO CHANGE THINGS

You can send us your story to info@hhtireland.org

The 2nd HHT International Guidelines were published in September 2020.

Always ensure your HHT specialist is aware of these Guidelines at your first consultation.

The Guidelines were developed by an international panel of HHT experts and patients, providing new evidence-based consensus recommendations in six priority topic areas: Epistaxis, Gastrointestinal Bleeding, Anaemia & Iron Deficiency, Liver VMs, Paediatric Care, Pregnancy & Delivery. The 2020 Guidelines add to the First International HHT Guidelines published in 2009, most notably in areas that were not re-assessed in 2020: HHT Diagnosis, Brain VMs and Pulmonary AVMs. The HHT Guidelines recommendations should facilitate the implementation of key components of HHT (Hereditary Hemorrhagic Telangiectasia) care into clinical practise.

HHT International Guidelines – HERE