HHT Resources

Below are links to HHT resources that may help answer any further questions you have about the condition, its management, and available treatments. These resources include educational materials, support networks, and professional organisations dedicated to improving the lives of those affected by HHT. If you have a resource that you believe would greatly benefit HHT patients and their families, we encourage you to share it with us. Your contributions can make a significant difference in providing comprehensive and up-to-date information to the HHT community. Please contact us with any suggestions or additions to our resource page.

HHT Flyer – HHT Flyer

HHT Booklet – HHT Booklet

CureHHT –  Resource Library

School Guide PDF – School Guide Ireland 2023

International Guidelines International Guidelines 2020

Dietary Choices Impacting Bleeding –    HERE

CureHHT Physician FactsheetHERE

CureHHT webinars – HERE

Oral Health Guide – HERE

Doctor’s Brochure – HERE

Life Expectancy (German Paper) – HERE

Life Expectancy (Dutch Paper) – HERE

CureHHT 14th International Scientific Conference, Portugal 2022  – HERE

Well-being and Positive Psychology | Fiona Forman. – HERE  Supporting Your Childs Emotional Wellbeing Booklet – HERE

By working together we can find effective solutions to improve HHT patients in their daily lives.
Your life story is valuable in making a difference, the more we talk about it, the more we can change things.



You can send us your story to info@hhtireland.org