The origins of HHT Ireland 

This voluntary organisation was set up in the memory of the late Grace Nolan and the late Paul Woods. Both children died suddenly – aged 9 and 22 respectively, from HHT in the lungs. It is hoped that no other person should suffer this fate. Our patient organisation is here to help all families living with HHT.

Awareness is key, so please take the time to learn about HHT and pass the word.


HHT Ireland has four core objectives

1. Raise awareness.
2. Provide support to affected families.
3. Advocate on behalf of HHT families for improved services in the treatment of HHT.
4. Help identify undiagnosed HHT patients

Mission Statement

“To raise awareness of HHT (Hereditary Haemorrhagic Telangiectasia) and provide support for the people affected by HHT and their families.”