HHT Ireland News/Blog
Join Us As We Celebrate Rare Disease Day 2023
Raising awareness 2023
International Women’s Day 2026
International Women’s Day 2026 This International Women’s Day 2026, HHT Ireland proudly celebrates the women across Ireland and beyond who strengthen and sustain the Rare Disease community.Women are at the heart of rare disease care — as patients, carers, advocates,...
World Rare Disease Day 2026
Shining a Light on Rare, Together Join HHT Ireland for World Rare Disease Day 2026. On February 28th, communities across Ireland will light up for rare. Together, we can raise awareness and stand with those living with rare conditions. Every year on February 28th, the...
Donate blood this Valentine’s Day
This Valentine’s season, HHT Ireland invites you to share your love in a way that truly matters through our annual #myHHTvalentine campaign. By donating blood, you can honour someone special in your life while helping to save lives within our community and beyond....
Women in Science
Celebrating Women in Science at HHT Ireland through the stories of women advancing research, advocacy, and patient care for people living with HHT.
World Cancer Day 2026
On World Cancer Day, the HHT Ireland community stands with everyone affected by cancer — individuals, families, and communities touched in countless ways. We are especially mindful of those living with cancer while also managing Hereditary Haemorrhagic Telangiectasia...
HHT Ireland Newsletter
HHT Ireland Newsletter: Keeping you informed on the latest developments, events, and advocacy efforts.
Little Red – HHT Ireland Advocate
Every awareness movement needs a voice. For HHT Ireland, that voice comes in the form of Little Red—our community mascot and advocate. Little Red wasn’t born overnight. He grew out of our Band on the Run awareness campaign, when our wristbands began travelling the...
Rare Barometer Survey for HHT
Rare Barometer Survey for HHT
HHT Ireland Leading Lights Lecture
This lecture series launched in 2023 will bring you information from international experts. It is a combined initiative of the Education & Training and the Research & Development departments and is led by Louise Breslin & Dr. Allison WatersAim Facilitate...
Dr. Sol’s HHT Reference Clinic
To our HHT Ireland community, Many of you know firsthand the extraordinary care and expertise of Dr. Sol and her team at the HHT Clinic in Madrid, particularly those of you who have travelled for sclerotherapy treatment under her guidance. Now, Dr. Sol is taking an...