HHT Ireland News/Blog
Join Us As We Celebrate Rare Disease Day 2023
Raising awareness 2023
HHT Presentation at Letterkenny University Hospital
HHT Ireland was delighted to witness the first-ever presentation on HHT at Letterkenny University Hospital. This event, aimed at healthcare professionals and medical students, also welcomed several HHT families from the local community, making it a truly impactful...
HHT International Scientific Conference
The 15th HHT International Scientific Conference, hosted by CureHHT, took place from October 15-19, 2024, in Mandelieu-la-Napoule, France. This prestigious event brought together leading researchers and experts from across the globe to share the latest advancements in...
Rare Barometer Survey for HHT
Rare Barometer Survey for HHT
Elaine Cook’s Story
Elaine Cook’s Story
Richael Timothy – Paracyclist
RICHAEL TIMOTHY – Paracyclist, Shares her HHT Story
Rare Barometer Survey on Newborn Screening
Welcome to Rare Barometer, where your voice shapes the future of rare diseases
HHT Patient Forum 2024
See you at our Annual HHT Patient Forum 2024
Interview with Jane Madden
On World Liver Day, Jane Madden talks about living with HHT and how it affects her Liver
Rare Disease Day 2024
Dara Woods talks to Greg Hughes from Highland Radio about Rare Disease Day 2024
Rare Diseases Day Awareness
Watch Denis Naughten TD – Wed 14th Feb – live on Oireachtas TV as he raises awareness of Rare Diseases