HHT Ireland News/Blog
Join Us As We Celebrate Rare Disease Day 2023
Raising awareness 2023
World Liver Day – 19th April 2026
On World Liver Day 2026, HHT Ireland explores how HHT can affect the liver — often without obvious symptoms. Learn about liver AVMs, monitoring, and early detection.
HHT Europe Conference, Rome 2026
This March, HHT Ireland travelled to Rome to represent Ireland at the Annual HHT Europe Face-to-Face Meeting. Read about the experience and see photos from the event.
World Oral Health Day 2026
For people living with HHT, dental care is about more than a clean smile. This World Oral Health Day, learn why oral health can be life-saving — and what to tell your dentist.World Oral Health Day, marked every year on 20 March, shines a light on the vital connection...
Representing HHT Ireland in Rome
We’re delighted to share exciting news with our HHT Ireland community. This March, three representatives from HHT Ireland will travel to Rome to take part in the Annual HHT Europe Face-to-Face Meeting, held over two days on 13–14 March 2026. Dara Woods, Chair of HHT...
International Women’s Day 2026
International Women’s Day 2026 This International Women’s Day 2026, HHT Ireland proudly celebrates the women across Ireland and beyond who strengthen and sustain the Rare Disease community.Women are at the heart of rare disease care — as patients, carers, advocates,...
World Rare Disease Day 2026
Shining a Light on Rare, Together Join HHT Ireland for World Rare Disease Day 2026. On February 28th, communities across Ireland will light up for rare. Together, we can raise awareness and stand with those living with rare conditions. Every year on February 28th, the...
Donate blood this Valentine’s Day
This Valentine’s season, HHT Ireland invites you to share your love in a way that truly matters through our annual #myHHTvalentine campaign. By donating blood, you can honour someone special in your life while helping to save lives within our community and beyond....
Women in Science
Celebrating Women in Science at HHT Ireland through the stories of women advancing research, advocacy, and patient care for people living with HHT.
World Cancer Day 2026
On World Cancer Day, the HHT Ireland community stands with everyone affected by cancer — individuals, families, and communities touched in countless ways. We are especially mindful of those living with cancer while also managing Hereditary Haemorrhagic Telangiectasia...
HHT Ireland Newsletter
HHT Ireland Newsletter: Keeping you informed on the latest developments, events, and advocacy efforts.