HHT Ireland News/Blog
Join Us As We Celebrate Rare Disease Day 2023
Raising awareness 2023
Hope Taylor HHT Ireland
Hope Taylor for HHT Ireland – One Ice Pop at a Time! 🍦❤️ Meet Hope Taylor from Cramlington, Northumberland, UK— a determined, kind-hearted young girl with a big smile and an even bigger heart. Hope is a younger sister to Lily, who lives every day with the challenges...
Move4HHT Moveathon
Get ready to lace up, and Move 4 HHT! Join us on Saturday, 21st June for Moveathon 2025 💙 You can walk, run, jog, skip, dance, swim or do anything active that brings you joy, every step you take supports HHT Ireland and the families we serve. 100% of the money raised...
HHT Annual Patient Forum
A Heartfelt Thank You to Our Amazing HHT Ireland Members! What an incredible day we had at the 2025 HHT Ireland Annual Patient Forum, held at Letterkenny University Hospital. We were thrilled to see everyone there, and we want to extend our deepest gratitude for your...
#myHHTvalentine – Donate Blood This Valentine’s Day
This February, HHT Ireland invites you to celebrate love in its most powerful form, by donating Blood this Valentine’s Day. Through our #myHHTvalentine | Donate Blood campaign, we’re calling on you to make a life-changing difference for those with rare diseases like...
Women in Science Dr. Elzanne HHT Ireland
Women in ScienceWe are happy to celebrate Women in Science Day 2025 with a special interview with Dr Elzanne Jansen van Rensburg who recently moved to Galway University Hospital to train as an anaesthetist. That’s a tough question! To be honest, science feels...
Women In Science for HHT
Every year on February 11, we honour the incredible achievements of women who have paved the way for future generations in science. At HHT Ireland, we are proud to join the global celebration, recognising the trailblazers, innovators, innovators, and leaders who...
HHT Presentation at Letterkenny University Hospital
HHT Ireland was delighted to witness the first-ever presentation on HHT at Letterkenny University Hospital. This event, aimed at healthcare professionals and medical students, also welcomed several HHT families from the local community, making it a truly impactful...
HHT International Scientific Conference
The 15th HHT International Scientific Conference, hosted by CureHHT, took place from October 15-19, 2024, in Mandelieu-la-Napoule, France. This prestigious event brought together leading researchers and experts from across the globe to share the latest advancements in...
Rare Barometer Survey for HHT
Rare Barometer Survey for HHT
Elaine Cook’s Story
Elaine Cook’s Story