HHT Ireland News/Blog
Join Us As We Celebrate Rare Disease Day 2023
Raising awareness 2023
Mourne 7×7 Challenge – in aid of HHT Ireland
THEY DID IT! OUR FABULOUS THREE At 6:30am on Saturday, August 8th, Dean, Simon & Kris stepped out into the Mournes and went straight uphill on Peak 1.No warm-up. No easing in. Straight into the challenge. 11 HOURS & 8 MINUTES LATER…THEY CROSSED THE FINISH...
World HHT Day – A Message of Thanks and a Call to Action
Today, on World HHT Day, we want to begin with one very important message — thank you. Thank you to the researchers who dedicate their lives to understanding HHT and working tirelessly to find better treatments and one day, a cure. Behind every breakthrough is a team...
Moveathon 2026: Thank You!
A huge thank you to everyone who took part in Moveathon 2026, from Madrid to Malahide Castle, to support HHT Ireland and raise awareness ahead of World HHT Day.
Moveathon 2026
HHT Ireland’s Moveathon 2026 takes place on Saturday 20th June. Wherever you are in the world, get moving, have fun and help raise vital awareness and funds for families living with HHT.
HHT Awareness Month: A Family’s Century-Long Journey with HHT
Five generations of one Irish family living with HHT — and the diagnosis that changed everything.
HHT and hormones: 5 ways your body changes
For people living with Hereditary Haemorrhagic Telangiectasia, symptoms don’t stay static — they shift dramatically across a lifetime. Emerging research reveals that sex hormones act as a hidden switch, altering the severity of HHT from pregnancy to menopause. Here are five surprising ways your hormonal profile may be controlling this rare vascular disorder.
World Liver Day – 19th April 2026
On World Liver Day 2026, HHT Ireland explores how HHT can affect the liver — often without obvious symptoms. Learn about liver AVMs, monitoring, and early detection.
HHT Europe Conference, Rome 2026
This March, HHT Ireland travelled to Rome to represent Ireland at the Annual HHT Europe Face-to-Face Meeting. Read about the experience and see photos from the event.
World Oral Health Day 2026
For people living with HHT, dental care is about more than a clean smile. This World Oral Health Day, learn why oral health can be life-saving — and what to tell your dentist.World Oral Health Day, marked every year on 20 March, shines a light on the vital connection...
Representing HHT Ireland in Rome
We’re delighted to share exciting news with our HHT Ireland community. This March, three representatives from HHT Ireland will travel to Rome to take part in the Annual HHT Europe Face-to-Face Meeting, held over two days on 13–14 March 2026. Dara Woods, Chair of HHT...