HHT Ireland News/Blog
Join Us As We Celebrate Rare Disease Day 2023
Raising awareness 2023
Little Red – HHT Ireland Advocate
Every awareness movement needs a voice. For HHT Ireland, that voice comes in the form of Little Red—our community mascot and advocate. Little Red wasn’t born overnight. He grew out of our Band on the Run awareness campaign, when our wristbands began travelling the...
Rare Barometer Survey for HHT
Rare Barometer Survey for HHT
HHT Ireland Leading Lights Lecture
This lecture series launched in 2023 will bring you information from international experts. It is a combined initiative of the Education & Training and the Research & Development departments and is led by Louise Breslin & Dr. Allison WatersAim Facilitate...
Dr. Sol’s HHT Reference Clinic
To our HHT Ireland community, Many of you know firsthand the extraordinary care and expertise of Dr. Sol and her team at the HHT Clinic in Madrid, particularly those of you who have travelled for sclerotherapy treatment under her guidance. Now, Dr. Sol is taking an...
Hope Taylor HHT Ireland
Hope Taylor for HHT Ireland – One Ice Pop at a Time! 🍦❤️ Meet Hope Taylor from Cramlington, Northumberland, UK— a determined, kind-hearted young girl with a big smile and an even bigger heart. Hope is a younger sister to Lily, who lives every day with the challenges...
Move4HHT Moveathon
Get ready to lace up, and Move 4 HHT! Join us on Saturday, 21st June for Moveathon 2025 💙 You can walk, run, jog, skip, dance, swim or do anything active that brings you joy, every step you take supports HHT Ireland and the families we serve. 100% of the money raised...
HHT Annual Patient Forum
A Heartfelt Thank You to Our Amazing HHT Ireland Members! What an incredible day we had at the 2025 HHT Ireland Annual Patient Forum, held at Letterkenny University Hospital. We were thrilled to see everyone there, and we want to extend our deepest gratitude for your...
#myHHTvalentine – Donate Blood This Valentine’s Day
This February, HHT Ireland invites you to celebrate love in its most powerful form, by donating Blood this Valentine’s Day. Through our #myHHTvalentine | Donate Blood campaign, we’re calling on you to make a life-changing difference for those with rare diseases like...
Women in Science Dr. Elzanne HHT Ireland
Women in ScienceWe are happy to celebrate Women in Science Day 2025 with a special interview with Dr Elzanne Jansen van Rensburg who recently moved to Galway University Hospital to train as an anaesthetist. That’s a tough question! To be honest, science feels...
Women In Science for HHT
Every year on February 11, we honour the incredible achievements of women who have paved the way for future generations in science. At HHT Ireland, we are proud to join the global celebration, recognising the trailblazers, innovators, innovators, and leaders who...