HHT Ireland News/Blog
Join Us As We Celebrate Rare Disease Day 2023
Raising awareness 2023
Rare Barometer Survey for HHT
Rare Barometer Survey for HHT
Elaine Cook’s Story
Elaine Cook’s Story
Richael Timothy – Paracyclist
RICHAEL TIMOTHY – Paracyclist, Shares her HHT Story
Rare Barometer Survey on Newborn Screening
Welcome to Rare Barometer, where your voice shapes the future of rare diseases
HHT Patient Forum 2024
See you at our Annual HHT Patient Forum 2024
Interview with Jane Madden
On World Liver Day, Jane Madden talks about living with HHT and how it affects her Liver
Rare Disease Day 2024
Dara Woods talks to Greg Hughes from Highland Radio about Rare Disease Day 2024
Rare Diseases Day Awareness
Watch Denis Naughten TD – Wed 14th Feb – live on Oireachtas TV as he raises awareness of Rare Diseases
#myHHTvalentine Campaign 2024
Donate blood today and save up to 3 lives…
Shellie’s Story – Part2
Shellie shares Part 2 of her story