To our HHT Ireland community,

Many of you know firsthand the extraordinary care and expertise of Dr. Sol and her team at the HHT Clinic in Madrid, particularly those of you who have travelled for sclerotherapy treatment under her guidance.

Now, Dr. Sol is taking an important step forward — applying to the Health Services in Spain to have her clinic officially recognised as a Reference Centre for HHT patients. This designation would be a major milestone, helping to secure funding, improve access, and ensure the long-term sustainability of the life-changing care she provides to patients across Europe — including Ireland.

But there’s a lot of paperwork, data, and statistics involved in this process. That’s where we come in.

If you have travelled to Dr. Sol’s clinic in Madrid for treatment in recent years, please take a few moments to complete a short survey. Your feedback will help document the impact of her work and demonstrate the international reach and value of her clinic — especially to Irish patients who currently have limited options at home.

This is a small but meaningful way we can support Dr. Sol and give back for the care many of us have received. It’s also a chance to be part of improving HHT care for future generations — both in Spain and here in Ireland.

Please complete the survey as soon as possible and share it with any other Irish HHT patients you know who have been treated by Dr. Sol.

For more information on Sclerotherapy

Or you can scan the QR Code to the Survey