Alone we are Rare, Together we are Strong
Another great Patient & Family Forum was held last Saturday in the Maldron Hotel, Portlaoise.
It was great to see some of our “Regulars”, but so energising to see so many new faces too!
Everyone was welcomed and told their own story. It is from hearing how others manage their HHT that we ourselves learn.
Lots of fresh ideas about growing our Patient Organisation.
Lots of work done, but lots more to do!
If you would like to know more about your HHT, please do get in touch & get involved!
Contact us here and meet people who understand.
