HHT EUROPE MEETS IN HAMBURG.
HHT IRELAND TRAVELS TO EUROPE
We are delighted to announce that HHT IRELAND sent four representatvies to Hamburg 17th and18th November, 2017 to participate in the Annual Assembly of HHT EUROPE. It is by meeting with other HHT organisations that we learn from each other.
HHT Spain, France, Italy, Germany, Switzerland, Sweden, Israel and France also attended.
EURORDIS – (the umbrella group in Europe for Rare Disorders) – has offered some small grants to some of the younger organisations.
Our host – HHT Germany – ensured we all had a great time, There was plenty of hard work but also lots of good fun and time to get to know each other even more! Our generous hosts has also offered a small fellowship to one of the younger Patient Organisations.
HHT Ireland was so excited to be part of this fabulous opportunity. Learning about HHT, its management and its treatments is one thing. However learning about growing our organisation for HHT patients and families is another very important aspect. We look forward to telling you all about it soon!
More information on our Meeting will follow soon.
