HHT Ireland was delighted to witness the first-ever presentation on HHT at Letterkenny University Hospital. This event, aimed at healthcare professionals and medical students, also welcomed several HHT families from the local community, making it a truly impactful occasion.

Mr. Vikrant Parihar, Consultant Gastroenterologist addressed the room, he emphasised the importance of a multidisciplinary approach in the management of patients with Hereditary Haemorrhagic Telangiectasia (HHT) upon hospital presentation. He highlighted the relevance of the Curacao Criteria in identifying potential HHT patients and ensuring timely diagnosis and treatment.

In discussing his clinical approach, Mr. Parihar shared a case study involving a patient, Michael, outlining the various diagnostic tests he conducted to determine the appropriate treatment plan. He noted that while both aspirin and clopidogrel were considered, a capsule endoscopy was performed to assess the patient’s gastrointestinal (GI) tract. The endoscopy revealed a small number of telangiectases, but a higher number of ulcers, which were likely caused by aspirin use. Based on these findings, clopidogrel was determined to be a more suitable alternative. Additionally, the patient was started on daily omeprazole to protect the GI tract from further damage. He also discussed his decision to prescribe iron infusions for Michael, aiming to maintain his ferritin levels and thereby prevent the need for blood transfusions. 

Mr. Parihar mentioned that the case study is being submitted by Dr. Tara McDonnell to the British Medical Journal, and they hope to see it published soon

 Finally, over the past few years, Mr Parihar has managed a number of HHT cases in Letterkenny, and he shared a positive outcome with one patient who was treated with Avastin. This therapy significantly improved her quality of life during the final two years of her life.

Mr. Stephen Power, Director of the HHT Centre at Mercy Hospital, was unable to attend but contributed valuable insights through a series of slides. He illustrated how untreated HHT requires the involvement of multiple specialties, making collaboration across disciplines vital.

This event, organised by Mr. Vikrant Parihar and his team, served as a crucial step in increasing awareness of HHT among healthcare professionals. Events like these are pivotal in fostering understanding, sharing knowledge, and ultimately improving outcomes for HHT patients and their families.

HHT Ireland extends its deepest gratitude to Mr. Parihar and all those who contributed to this significant milestone. Together, we look forward to building a stronger network of support and expertise for HHT families across Ireland.

By working together we can find effective solutions to improve HHT patients in their daily lives.

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