Women are at the heart of rare disease care — as patients, carers, advocates, nurses, doctors, researchers and volunteers.

Their resilience and dedication ensure that families feel supported and that progress continues, even in the face of complex challenges.

We especially recognise the invaluable role of carers and the commitment of women healthcare professionals.

At the same time, we acknowledge the ongoing gender health gap, where disparities in research, diagnosis and treatment can delay care and impact outcomes for women — an issue that can be even more pronounced in rare diseases.