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European Conference on Rare Diseases 2018

HHT Ireland attends ECRD2018 in Vienna

European Conference on Rare Diseases 2018

The European Conference on Rare Diseases (ECRD) 2018 was held in Vienna 10-12th May. More than 900 people were in attendance. They represented Patient Organisations (like ourselves), Pharmaceutical, Clinical & Legislative authorities. The 3 days of intensive learning involved workshops & projects in which the various communities of rare diseases exchanged their stories of experience.

We all left Vienna with renewed enthusiasm, energy & hope.

Lots of work to put into practise. So much happening in the Rare Disease world and HHT Ireland is proud to be part of it!  

Enjoy the photos below.



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