We are delighted to advise that HHT Ireland has become a member of HHT Europe.
Together with HHT Spain, France, Germany, Norway, Italy, UK & Switzerland, we aim to foster the creation of many more HHT organizations throughout Europe, in countries where no such organizations exist yet.
HHT Europe will communicate exisiting HHT services and information at a European level in an accessible way.
HHT Ireland will become a stronger & more efficient organization, with a good knowledge of legislations, orphan drugs and nonprofit management so we can start truly contributing to a change in the destiny of people with HHT.
Member countries of HHT Europe met recently in Rome to discuss its Launch.
Watch this space for more information soon!