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HHT IRELAND TRAVELS TO EUROPE

HHT EUROPE MEETS IN HAMBURG.

HHT IRELAND TRAVELS TO EUROPE

We are delighted to announce that HHT IRELAND sent 4 representatvies to Hamburg 17th&18th Nov, 2017 to participate in the Annual Assembly of HHT EUROPE. It is by meeting with other HHT organisations that we learn from each other. 

HHT Spain, France, Italy, Germany, Switzerland, Sweden, Israel &  France also attended.

EURORDIS - (the umbrella group in Europe for Rare Disorders)  - has offered some small grants to some of the younger organisations. 

Our host - HHT Germany - ensured we all had a great time, There was plenty of hard work but also lots of good fun & time to get to know each other even more! Our generous hosts has also offered a small fellowship to one of the younger Patient Organisations.

HHT Ireland was so excited to be part of this fabulous opportunity.  Learning about HHT, its management & its treatments is one thing. However learning about growing our organisation for HHT patients & families is another very important aspect. We look forward to telling you all about it soon!

More information on our Meeting will follow soon.

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