Rare Disease Day is the official international awareness-raising campaign for rare diseases which takes place on the last day of February each year.

The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Rare Disease Day was launched by EURORDIS – Rare Diseases Europe – and its Council of National Alliances in 2008

HHT-Rare-HandsShow your support for Rare Disease Day by sharing a photo with painted hands to show solidarity with people living with a rare disease in your community! Why not visit some of the many locations countrywide being lit up for Rare Disease Day 2023. Check your local papers for more information.

Share all your images on social media using #RareDiseaseDay and tag @rarediseaseday.



You can also help by adding the official Facebook frame and Twibbon to your profile photos!

You can also raise awareness about rare diseases and their impact on peoples’ lives by sharing your story of living with a rare disease or caring for someone who does. You can submit a written or video testimony for our website by using our Contact form.

If you would like to meet up with other Rare families, you could join the members of Rare Ireland Family Support Network and enjoy a fun SWIM at Portmarnock Beach, Co Dublin on Sunday 26th or Killmurrin Beach, Waterford Saturday 25th . Check their Facebook page for other coffee morning events being held nationwide.

Swords Castle will be #LightingUp4Rare Feb 20-28th. Join us at the Castle on Tuesday 28th @7pm to mark #RareDiseaseDay 2023.

Other buildings lighting up for Rare are – Chamber of Commerce – Mullingar, St Peter & Paul’s Church – Athlone, Institute of technology & St Mary’s Cathedral – Limerick, City Hall – Cork, Kildare Co Co offices, Barberstown Castle – Kildare, Maynooth College – Kildare, Cavan Courthouse – Cavan,  Clare Co Co offices – Clare.

So come along and take some photos and tag @hhtireland, using hashtag #LightUp4Rare.




Did you know there are 300 million people worldwide living with a rare disease.