Rare Disease Day is a time to come together, celebrate resilience, and raise awareness for the millions of people around the world living with rare conditions. At HHT Ireland, we are proud to stand with the rare disease community, shining a light on Hereditary Haemorrhagic Telangiectasia (HHT) and the incredible strength of those affected.

HHT is a rare genetic condition that often goes unrecognised, but with greater awareness, we can improve early diagnosis and help support families navigating this journey. This Rare Disease Day, we invite you to be a part of something bigger share your story, #LightUp4Rare and spread the word to help make rare diseases more visible.

Together, we can create a world where no one faces a rare disease alone. Let’s celebrate the courage, connection, and hope that make Rare Disease Day so meaningful. By raising our voices, we can make a difference—one step at a time, one story at a time, one voice at a time.

Dara Woods, representing HHT Ireland, shares insights with Greg Hughes of Highland Radio about Rare Disease Day.

Their conversation is warm and engaging, touching on the significance of the day and the challenges faced by those living with HHT on rare disease day.

They bring awareness with empathy and understanding, making it an enlightening discussion for all listeners

Join us in showing our support for the Rare Disease community by visiting your local county council buildings tomorrow evening as we #LightUp4Rare.

Capture the moment with a photo and share it on social media, tagging HHT Ireland. Let’s unite to show our support and compassion—because every gesture counts!

#ShowYouCare #RareIsMany #RareIsProud