Katie Woods Talks About Living With HHT               katie and paul

As part of Rare Disease Week, Katie Woods talks about living with HHT and how she has coped after the sudden death of her brother Paul from HHT. Katie & Paul, together with their mother Dara, suffered from daily unexplained nosebleeds. After genetic testing they got the diagnosis of HHT – a genetic blood-vessel disorder which affects many organs in the body. Unexplained & recurrent nosebleeds are the most common symptom of HHT.

Read Katies’ interview with Irish Independent here.