As World Rare Disease Day is upon us once again, why not watch our video as Dara Woods from Swords talks openly to Daithi & Maura about life with HHT. 

As a patient of HHT and a mother of two children who inherited this rare genetic disease, Dara tells us how she lost her only son Paul, aged 22 years, suddenly and unexpectedly, to HHT.

Source: RTE1 The Today Show.

News Rare Disease Day 2021