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Aodhan’s Story: On Aodhán’s 56th birthday in 2006, he suffered a stroke. 5 years later in 2011, he was found to have a Pulmonary (lung) AVM, as a manifestation of his HHT. This was successfully embolised at the National HHT Centre, in The Mercy University Hospital in Cork, under the care of Drs. Adrian Brady & Terry O’Connor. Aodhán’s recovery has been such that he cycled 5500 km (3800 miles) across America, from Los Angeles to Washington DC, in 2012, and he has subsequently guided others on cycling trips in Ireland, Poland, Vietnam, Laos and Cuba. Aodhán remains very fit and well, other than suffering from heavy nosebleeds, especially in response to temperature changes. HHT remains part of his life, but successful treatment of his pulmonary AVM has maintained his healthy, active lifestyle and protected him from further strokes.