HHT-SupportJoin Us As We Celebrate Rare Disease Day

Rare Disease Day is the official international awareness-raising campaign for rare diseases which takes place on the last day of February each year.

The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Rare Disease Day was launched by EURORDIS – Rare Diseases Europe – and its Council of National Alliances in 2008

HHT-Rare-HandsShow your support for Rare Disease Day by sharing a photo with painted hands to show solidarity with people living with a rare disease in your community!

Share on social media using #RareDiseaseDay and tag @rarediseaseday.



You can also help by adding the official Facebook frame and Twibbon to your profile photos!

You can also raise awareness about rare diseases and their impact on peoples’ lives by sharing your story of living with a rare disease or caring for someone that does. You can submit a written or video testimony for our website by using our Contact form.

Did you know there are 300 million people worldwide living with a rare disease.