Representing HHT Ireland in Rome: HHT Europe Annual Meeting 2026
We’re delighted to share exciting news with our HHT Ireland community. This March, three representatives from HHT Ireland will travel to Rome to take part in the Annual HHT Europe Face-to-Face Meeting, held over two days on 13–14 March 2026.
Dara Woods, Chair of HHT Ireland, will be joined by Petronella McLoughlin as they represent Ireland at this important European gathering.
Carrying Your Voices with Us
Our representatives will carry your experiences, concerns, and hopes to Rome. We are proud to ensure that Ireland has a strong and informed presence at the HHT Europe table.
We look forward to sharing updates from the meeting and continuing our work together, both at home and across Europe, to improve the lives of everyone affected by HHT.
Thank you for your continued support of HHT Ireland.
Standing Together for Equal Access to Treatment
At HHT Ireland, we believe that where you live should not determine the care you receive. Events like this strengthen our fight for equal access to all HHT therapies across Europe.
Being physically present in Rome alongside HHT delegates from across Europe allows us to:
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Build relationships and exchange ideas
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Ensure the Irish HHT community is fully represented in discussions shaping policy, research, and access to care
HHT Research Updates
Stay informed on significant new HHT publications, emerging research, drug development, and clinical trials planned for 2026.
Learn from the Experts
Guest speakers from clinical, research, and pharmaceutical fields share the latest progress in HHT treatment and understanding.
Evidence-Based Advocacy
Gain practical guidance on using Rare Barometer data to strengthen advocacy efforts and make a real impact at national level.
HHT Europe Action & Collaboration
Explore successful advocacy campaigns and workshops shaping HHT Europe’s Action Plan 2026–2028, driving improvements across Europe.
Representatives from across Europe will gather for the HHT Europe Meeting 2026 to explore emerging research, clinical developments, and patient advocacy. The programme includes pre-meeting workshops, Session 1: Setting the Scene & Horizon Scanning, Session 2: Hot Topics in HHT, Session 3: Sharing Best Practices, Session 4: Evidence-Based Advocacy, and Session 5: Faster Forward Together. For full details, including how to reach the Mercure Roma West Hotel, travel into Rome city centre, and workshop information, download the full agenda here (PDF). Download Here
Help us carry the voices of the Irish HHT community and advance advocacy across Europe.