Today we unite and celebrate our amazing HHT families on World HHT Day.

World HHT Day, observed on June 23rd each year, is a powerful reminder of the strength and resilience of those affected by Hereditary Haemorrhagic Telangiectasia (HHT). This global awareness day brings together individuals, families, healthcare professionals, and organizations to shed light on this rare genetic disorder.

On this day, communities unite to share stories, raise funds for research, and advocate for improved diagnosis and treatment options.

World HHT Day serves as a beacon of hope, fostering a sense of solidarity among patients, inspiring them to fight for better care, and encouraging the world to listen, learn, and support the HHT community.


Together, we can make a difference and empower the HHT community to embrace a future filled with possibilities.