World Rare Disease Day 2026 – February 28
Shining a Light on Rare, Together
Join HHT Ireland for World Rare Disease Day 2026. On February 28th, communities across Ireland will light up for rare. Together, we can raise awareness and stand with those living with rare conditions.
Every year on February 28th, the global rare disease community comes together to mark #WorldRareDiseaseDay – a powerful international campaign dedicated to raising awareness of rare conditions and the millions of people worldwide who live with them every day.
Here in HHT Ireland, this day holds special meaning. As a rare disease community, we know firsthand how vital awareness is – not just once a year, but every day. So we invite you to come along on Feb 28th and join many others at any of your local buildings which will be lit up for #RDD
Why World Rare Disease Day Matters
Rare diseases are often called rare, but together they are anything but. Over 300 million people worldwide are living with a rare condition and yet many still face delayed diagnoses, limited treatment options and a lack of understanding from wider society.
For people living with Hereditary Haemorrhagic Telangiectasia (HHT) and their families, awareness can quite literally change lives. It can lead to:
- Earlier diagnosis
- Better access to specialist care
- Improved quality of life
- Greater understanding and empathy
Most importantly, awareness helps people feel seen, heard and less alone.
A Global Campaign with a Powerful Message
At HHT Ireland, we are proud to stand alongside rare disease organisations across Ireland and around the world to support this amazing campaign.
How You Can Get Involved
We are asking all our supporters – patients, families, friends, healthcare professionals and allies – to help us raise awareness in whatever way feels right for you:
- Light Up 4 Rare – take a selfie wherever your local buildings are lit up for #RDD
- Share information & images about HHT and Rare Disease Day on social media
- Start a conversation with friends, colleagues, or classmates
Stand With Us This World Rare Disease Day
Rare is many. Rare is strong. Rare is powerful — especially when we stand together.
From 26th February to 10th March, help us keep the light shining beyond just one day.
Whether you light up a building, share a post, start a conversation, or simply wear your colours with pride — your voice matters.
👉 Get Involved Today
👉 Share Your Support Using #WorldRareDiseaseDay
👉 Learn More About HHT
Awareness begins with one action.
One share. One photo. One conversation.
And together, those small acts become something extraordinary.
Let’s shine a light.
Let’s raise awareness.
Let’s make rare visible.