Nosebleeds are the most common sign of HHT

Nosebleeds HHT

Nosebleeds, medically known as epistaxis, are a common occurrence, typically caused by the rupture of small blood vessels inside the nose. While often harmless and easily treatable. Recurrent or severe nosebleeds may indicate an underlying condition, such as Hereditary Haemorrhagic Telangiectasia (HHT).

Hereditary Hemorrhagic Telangiectasia, or HHT, is a genetic disorder characterised by abnormal blood vessel formation. These abnormal vessels, called telangiectases, are fragile and prone to bleeding. This leading to recurrent nosebleeds as well as bleeding in other parts of the body. HHT can vary greatly in severity, with some individuals experiencing mild symptoms while others may face more significant health complications.

Early diagnosis and management are crucial for individuals with HHT to prevent complications and improve quality of life. If you frequently experience nosebleeds or have a family history of HHT, it’s essential to seek medical advice for proper evaluation and treatment. Understanding the symptoms and potential risks associated with HHT can help in managing the condition effectively.

VASCERN is the European Reference Network aiming at improving and homogenising care of patients with rare multi-systemic vascular diseases throughout Europe.

We strongly recommend you watch Vascern’s webinar on HHT & Nosebleeds HERE


We also strongly recommend that you share the information on the International HHT Guidelines with your GP and/or ENT consultant.

Vascern - nosebleeds HHT