Coping With Nosebleeds

HHT-Nosebleed-Workshop-2019-resizedAs a result of our Nosebleed workshop carried out in Nov 2019, HHT Ireland is delighted to produce an informative leaflet for our HHT patients & carers.

We remind ourselves that we are not doctors but by our own experience we often are the experts!

For more informations click  Coping with Nosebleeds

 

HHT Booklet & Flyer

In collaboration with HHT Europe and our National HHT Centre in Cork, we published & distributed Understanding HHT Booklet and HHT-Flyer to family members, Doctors & Dentists nationwide.

As we are registered with the National Rare Diseases Office in Mater Hospital, Dublin,  we stock a supply of our HHT Booklets & Flyers in the Rare Disease Information Booth. These are free to everyone to take home.

We hope you enjoy this material and find it helpful in explaining the disorder to others.

HHT SchoolGuide

.In order to help our teachers understand our HHT students better, we printed & distributed our School Guide 2020 to all interested patient families.  We hope our teachers find this guide a very useful tool in understanding how to manage the HHT student in any HHT-related event

Patient Forum

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Each year HHT Ireland hosts our Annual Patient & Family Forum. This is an opportunity for all families to come together and share information whilst offering support and empathy to their fellow patients.

Patients share their techniques to managing daily nosebleeds. They offer fresh ideas and suggestions on how to cope with the challenges of HHT.

Patients are often happy to recommend their own HHT specialist to others.

The support and friendship offered at these events are invaluable to many!

In 2019 we were delighted to have 4 HHT specialists attend our Annual Patient Forum as guest speakers. They were specialists in 4 areas – Nose, Lungs, Brain & Gastro-Intestinal.

We hope to invite many other HHT specialists in the future. It is so important that our healthcare professionals truly understand how HHT affects us each day. 

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HHT Specialists with Board of HHT Ireland

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HHT Specialists – Dr Mohsen Javadpour, Dr Mohammed Amin, Dr Adrian Brady & Dr Martin Buckley

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HHT Patients & Families

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Dr Adrian Brady

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Dr Mohsen Javadpour

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HHT Patients & Families

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Michael MacGinty

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Elaine Solan

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Gerard Murray & Michael MacGinty

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Elaine Solan, Dara Woods & Gerard Murray

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Shirley Murray, Dara Woods & Michael MacGinty

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Dr Mohsen Javadpour

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