Patient Stories | Living with HHT
Your life story is valuable in making a difference, the more we talk about it, the more we can change things.
TOGETHER WE HAVE THE POWER TO CHANGE THINGS
You can send us your story to info@hhtireland.org or fill in the form below
Read our inspiring Patient Stories | Living with HHT below. What an amazing group of people! Thank you all for sharing your story with us.
Elaine Cook’s Story
Elaine Cook’s Story
Shellie’s Story – Part2
Shellie shares Part 2 of her story
Jack’s story
Jack’s story
Idoia’s story
Idoia Dunbar HHT story
John Mc Art’s story
John McArt HHT story
Michael’s story
Michael MacGinty HHT story
Darren’s story
Darren’s story
Dara’s story
Dara’s story
Aodhan’s story
Aodhan’s story
Christian’s story
Christian’s story
Mary’s story
Mary’s story
Shellie’s story
Shellie’s story
Katie’s story
Katie’s story
Catriona’s story
Catriona’s story
Sharon’s story
Sharon’s story
Rare Disease Day 2022
We talk to those living with the rare disease – HHT
My HHT Story
Shellie Cullen talks about HHT
HHT- My Story
Living with HHT can have its challenges
Interview with Susan
Interview with Susan on living with Liver AVMsWe have been very lucky to have the opportunity to talk to Susan , an HHT patient who lives with the challenges of Liver VMs daily. 1. Susan, at what age were you diagnosed with HHT? I was 55 years old....