HHT-Remembrance-header

YOUR HHT STORY IS VALUABLE IN MAKING A DIFFERENCE

Living with a disorder often brings feelings of loneliness and isolation. However, many individuals are affected by HHT, and through collaboration, we can discover effective solutions to enhance the daily lives of HHT patients. Sharing your HHT story is vital for managing a chronic disorder. Open dialogue not only fosters understanding but also drives change. Here are some compelling reasons to share your HHT story:

STEP BACK PUT THINGS INTO PERSPECTIVE

Talking about your disorder by sharing your HHT story enables you to take the time to acknowledge everything that happened to you and your loved ones, how it made you feel, what you did, and the way the experience(s) influenced your present life.

Sharing an experience leads to more objectivity and it is also an opportunity to explore things in a way we haven’t thought of so far.

Breaking the silence related to a rare disorder is crucial to feeling liberated and overcoming the feeling of loneliness or helplessness.

INSPIRE AND EMPOWER: YOUR JOURNEY WITH HHT PROVES IT IS POSSIBLE.

Not only do you help and heal yourself through a therapeutic approach, but you will inspire and support others by sharing your unique experience. And what makes it unique is precisely YOU.

Do you remember the last time you felt really alone with a struggle in your life? What if someone told you at that time that things were possible, that you could make it because they did?

Now you have the chance to be this person for someone else by sharing your story.

YOUR STORY HAS THE POWER TO HELP CHANGE THINGS

HHT is a rare disorder, which means that we need to raise awareness to make this disorder known by more people.

By participating in writing our story of HHT we create more information and show the world that we matter.

Together we have the power to change things.

You can send us your story to info@hhtireland.org

We can’t wait to read it!

Why not read some of the incredible patient stories HERE  – We hope they fill you with positive energies and courage!

By working together we can find effective solutions to improve HHT patients in their daily lives.
Your life story is valuable in making a difference, the more we talk about it, the more we can change things.

 

TOGETHER WE HAVE THE POWER TO CHANGE THINGS

You can send us your story to info@hhtireland.org

1 + 2 =