Who is VASCERN

As part of HHT Ireland’s mission, which advocates for our patients’ interests nationally and actively participates in the European Reference Network for Rare Multisystemic Vascular Diseases (VASCERN). Through this collaboration, we ensure that our patients benefit from the latest research and expert care across Europe, with the support of leading specialists like Prof. Claire L. Shovlin,

The European Reference Network for Rare Multisystemic Vascular Diseases is dedicated to improving the lives of patients with rare vascular diseases across Europe.

Our main goal is to provide highly specialized and integrated healthcare to patients with rare vascular diseases. We bring together a multidisciplinary team of experts from across Europe with extensive experience in rare vascular diseases, including specialists in cardiology, genetics, otorhinolaryngology, pediatrics, and many others.

Pro. Claire L. Shovlin is Chair of VASCERN HHT and Lead Clinician VASCERN HHT in London.

Learn how to manage a pregnancy with Hereditary Haemorrhagic Telangiectasia, including detailed discussions of risks such as Pulmonary and Hepatic arteriovenous malformations.